Meet Ella

 

Hi, I’m Ella!

When I was seven, I was diagnosed with Idiopathic Thrombocytopenia Purpura or, "ITP". Many kids who get this grow out of it within a few months, but for me it’s never gone away. That makes me a pretty rare case :).

ITP is not contagious; it means my body destroys the platelets in my blood. The platelet count for the average person is generally between 150,000 and 450,000 platelets per microliter of circulating blood. People with ITP often have platelet counts below 20,000. Mine go well below 10,000.

Without any treatment, I have an extremely low number of platelets in my body, and I am at a high risk for bleeding or injury which makes it hard for me to play certain sports or participate in certain activities. I can’t go sledding, climb trees, play sports like soccer or lacrosse, ride my bike, or even do PE class when my platelets are very low.

Every 8 weeks, I spend the day at an outpatient clinic getting an infusion of IVIG, a medicine that helps increase the number of platelets in my body. After the IVIG, I have to take steroids for a week to help minimize the side effects of the IVIG, although it still makes me feel pretty crummy. I often miss school due to post-infusion migraines, and doctor appointments.

Despite all this, I still have things I love to do and are safe for me most of the time. I like to read and study, go fishing, and I love to sing with the Fairfield County Children’s Choir, and and perform in my school musicals.

On top of that, I have my mom and dad, three younger sisters, and two cute rescue dogs named Holly and Nova to support me.

Ella